Part 2: what if you found out their diagnosis 1 week after birth

  • Sadbutdru@sopuli.xyz
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    9 days ago

    Yes, in my experience, aquired brain injury is one of the hardest things for people (and their families) to adapt to, but that’s a whole different kettle of fish than Down’s syndrome.

    The post talks about the ethics of pre-emptively aborting a fetus that has a high likelihood of "severe downs syndrome ", and this is something many people face irl ask the time. my point is (mainly) that people with Down’s syndrome can have a lot of joy in their lives, and bring a lot of joy to those around them, despite the fact that they will face certain struggles (as so many of us do, in our own ways). And (secondly), although it’s outside the scope of the hypothetical situation in the op, foetal tests for Down’s syndrome are notoriously unreliable.

    I’m just saying don’t be afraid. Most new parents want to avoid any chance of anything ‘wrong’ with their child, but nearly everyone has something…

    Source: have worked with children and adults with a variety of physical and intellectual disabilities, and in my own friends and family know (and care for) a multitude of neurodiverse people and those with chronic mental illness or addictions.

    • Spacehooks@reddthat.com
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      6 days ago

      I guess I dont see the difference since in the end they both result in humans being alone and dependent on a system to take care of them.

      In this case, the brother’s care was nail in coffin facturing his family, then add in the psychology pain my SO had growing up with him, and the stress my partner feels thinking about being responsible for him after parents die when he calls regularly and just talks about how unhappy he is every time, its impossible for me to accept letting anything similar occur when you could just not let it happen.

      I guess my point is if its preventable, stop your fellow humans from a life of suffering because its not just 1 person suffering but the people around them.